Living Well After Head and Neck Cancer Research Group

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Michelle is a Clinical Academic Speech and Language Therapist, specialising in dysphagia (swallowing difficulties), working across the University of Liverpool and Mid Cheshire NHS Trust. She is currently undertaking an NIHR Advanced Fellowship, developing and evaluating the feasibility of a novel intervention to improve swallow function for people following head and neck cancer, in addition to working clinically as an Advanced Clinical Specialist in head and neck oncology. She is passionate about developing innovative technologies through research to improve patient outcomes.

Michelle received her undergraduate degree in Speech Pathology and Therapy from Manchester Metropolitan University (BSc (Hons): first) in 2003. She went on to complete a PhD at the University of Manchester, winning a Stroke Association postgraduate Fellowship in 2013. As part of her PhD, Michelle developed a psychometric scale to measure the impact of developing a positive therapeutic alliance in aphasia rehabilitation, which is now being translated internationally. Following her PhD, she secured an NIHR postdoctoral bridging Fellowship in 2021 and Advanced Fellowship in 2023.

Michelle has over 20 years of clinical experience in assessment and management of dysphagia and communication impairment arising from multiple aetiologies. Her clinical and research interests include: prehabilitation, outcome measurement, instrumental assessment, respiratory disorders, psychosocial adjustment and novel swallow interventions. She has presented nationally and internationally and taught at undergraduate and postgraduate level. She is mentor for research-active healthcare professionals and a supervisor for pre-doctoral and doctoral students.

Michelle leads the ‘Improving Outcomes in Head and Neck Cancer’ research seminars at the Liverpool Head and Neck Centre. She is a mentor and research champion for The Royal College of Speech and Language Therapists and a steering group member of the Council of Allied Health Professions Research (CAHPR).

Simon worked as Consultant Surgeon at the Liverpool Head and Neck Centre with special interest in oncology and microvascular free tissue reconstruction between January 1999 to April 2022. From 2007 he had a funded secondment as professorial in the Faculty of Health, Social Care and Medicine at Edge Hill University.

He has published extensively with over 450 peer review papers and numerous book chapters. The main focus has been on the subject of patient reported outcome and quality of life. He was instrumental in the development of the UW-QOLv4 which was published in 2002. This questionnaire is one of the most commonly reported QOL questionnaires used in head and neck cancer.  http://www.handle-on-qol.com/Index.aspx

As the Chief Investigator, he has seen the successful completed a NIHR funded trial: ‘Improving quality of life through the routine use of the Patient Concerns Inventory for head and neck cancer patients: a cluster preference randomized controlled trial (NCT03086629). This trial produced 13 peer review publications.

Simon chaired the NHS England Quality of Life Metric Steering Group for many years. The Group successfully delivered full national roll-out in October 2021.This initiative is part of the ‘Achieving World-Class Cancer Outcomes: a strategy for England’.

From May 2022 Simon was appointed as a full-time consultant in the Department of Oral and Maxillofacial Surgery, at Wirral University Teaching Hospital. In October 2022 he was appointed as Clinical Lead for Research and Innovation at the Trust.

Simon remains research active through his links with the Liverpool Head and Neck Centre. He contributes to the Living Well After Head and Neck Cancer Research group.

https://www.researchgate.net/profile/Simon-Rogers-2

7,774 Research Interest Score, 17,122 Citations, 70 h-index (ORCID identifier: 0000-0002-5989-6142).

In 2024 Simon was awarded The Down Surgical Prize: The Down Surgical Prize is the most prestigious award given by the British Association of Oral and Maxillofacial Surgeons for excellence and outstanding contribution. The prize and Medal awarded annually, which will be considered a high honour, to be awarded to a person or persons who are adjudged to have made a major contribution to Oral and Maxillofacial Surgery in the widest sense.

Gemma is an academic clinical psychologist who combines a clinical role (psycho-oncology) at the Royal Liverpool University Hospital with a substantive post as a Senior Lecturer in Clinical Psychology at the University of Liverpool.

As well as working on the doctoral training programme helping to train clinical psychologists, she conducts research designed to improve the experiences of patients with physical health difficulties (particularly cancer). Her research focuses on understanding why some people experience psychological distress after a diagnosis of cancer or physical health difficulty, and on developing and testing interventions to reduce psychological distress in this context. She also has an interest in clinical decision-making and clinical communication, and lead several studies focused on improving these aspects of care. I work closely with the Liverpool Head and Neck Centre on a range of studies, including:

• an NIHR-funded trial (the ACTIOHN study) examining the feasibility of a tailored exercise programme for patients with head and neck cancer (qualitative lead)

• studies designed to improve swallowing and lymphoedema outcomes for patients (including leading the qualitative aspect of feasibility studies and co-supervising the development and validation of a lymphoedema quality of life scale)

• studies examining treatment decision-making for older adults with advanced cancer and their carers  

I am passionate about improving the experiences and well-being of those affected by cancer in our region and am also working closely with the LHNC team to progress grant applications to this end.

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Pete is a senior lecturer in Radiotherapy and Oncology at the University of Liverpool where he teaches radiotherapy planning, physics and research skills. Prior to this, he worked as a senior lecturer and undergraduate course coordinator at Queensland University of Technology in Brisbane, Australia. Pete’s research interests lie in the role of technology for radiotherapy education and clinical practice and particularly the use of virtual reality.

He conducted the first evaluation of a virtual linear accelerator educational resource prior to its commercialisation as VERT (Virtual Environment for Radiotherapy Training) and led a funded project to develop and evaluate a medical imaging 3D immersive educational environment. He has published on a wide range of educational innovations ranging from VR applications to engaging patients to provide student feedback. He co-authored the “CT Anatomy for Radiotherapy” textbook, is the Editor in Chief for the Journal of Radiotherapy in Practice and is one of the editors of the 9th edition of Walter and Miller’s Textbook of Radiotherapy.

He has recently developed and evaluated a VR environment for supporting mental wellbeing for students and is currently co-leading an NIHR-funded project exploring the use of VR during head and neck radiotherapy. In his spare time he enjoys mountains, mud and good beer.

Dr Hannah Doughty is a mixed methods researcher who is currently working as a Lecturer in Psychology at Liverpool John Moores University. She holds a First-Class Honours (BSc) degree in Applied Psychology awarded by LJMU in 2015 and a PhD in Health Psychology, awarded by the University of Liverpool in 2024. Her PhD applied behaviour change theory to explore the barriers to, and facilitators of, physical activity promotion and participation for people living with and beyond head and neck cancer. For over a decade, she has worked across academic and NHS settings including The Clatterbridge Cancer Centre in health-related research, with a strong focus on improving the quality of life for people affected by head and neck cancer. She is an active member of the Research Centre in Brain and Behaviour and the Institute for Health Research at LJMU, where she Co-Leads the Cancer Specialist Interest Group.

Hannah’s research interests are focussed on improving the quality of life of individuals living with and beyond cancer and other long-term conditions. She applies behavioural science to understand and address unmet needs, particularly in underserved cancer cohorts. Her interests include:

• The psychological impact of cancer

• Health-related behaviour change

• Palliative and supportive care needs in head and neck cancer

• Patient and public involvement in health research

• Patient-centred care, service design and delivery

• The use of qualitative methods to inform the design and delivery of clinical services and trials.

She has led research focused on improving psychological wellbeing, quality of life and physical activity engagement for those living with and beyond head and neck cancer, and she has contributed to work exploring the palliative care needs of people with advanced head and neck cancer. In addition, she has co-designed a book exploring patient experiences of radiotherapy for gynaecological cancer, which was shortlisted for the Excellence in Research Award by North West Cancer Research.

🔗 ORCiD: 0000-0003-0493-6423

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Laura-Jayne's doctoral thesis aims to better understand what care people with a laryngectomy and their families need at home.

Research Question:

What are the healthcare needs of laryngectomy patients and their families following discharge after surgery and how can these be incorporated into a prototype education and training package for use by community healthcare professionals?

Research Objectives:

1. To identify and critically review available laryngectomy education and training packages (ETP)

2. To explore patient and family members experiences and needs from community healthcare services following laryngectomy

3. To co-design a prototype laryngectomy ETP for community healthcare professionals

Methods:

There will be three work-streams in this research:

· Work-stream 1: Environmental scan of available laryngectomy ETP’s

· Work-stream 2: Semi-structured qualitative interviews with laryngectomy patients and family members

· Work-stream 3: Co-design workshops with patients, families and healthcare professionals to design a prototype ETP

Two simultaneous groups will run alongside the research: patient-advisory group and healthcare professional stakeholder advisory group. Both groups will review findings from the environmental scan and semi-structured interviews to shape the co-design phase and ensure the research stays grounded in patient experience and service needs.

Supervisors: Professor Jo Patterson,

Linda is an advanced practitioner dietitian with over 12 years clinical experience, specialising in home enteral feed and head and neck cancer. She has developed a research interest in prehabilitation in head and neck cancer. In 2020 she secured an NIHR pre-clinical academic fellowship and completed a systematic review to investigate the current landscape of nutritional prehabilitation in head and neck cancer.

In January 2025 she will commence an NIHR Doctoral Clinical Academic Fellowship in collaboration with the University of Liverpool and the Liverpool Head and Neck Centre. The aim of her research is to develop, implement and investigate the feasibility of a Co-produced nutritional prEhabilitation iN Head And Neck CancEr intervention for patients treated with radical radiotherapy (+/- chemotherapy) (Co- ENHANCE).

She is also chair of the British Dietitian Association (BDA) specialist group Parenteral and Enteral Nutrition Group (PENG) and represent PENG on the British Association of Parenteral and Enteral (BAPEN) council.

Supervisors: Jo Patterson

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Sarah’s research aims to explore how transoral surgery affects swallowing and communication in the first six weeks following surgery for cancer of the oropharynx (part of the throat directly behind the mouth that helps you speak and swallow).

Sarah’s research will provide:

• In depth analysis of early post operative changes to function (speech and swallowing) which will allow clinicians to delineate which patients benefit functionally from transoral surgery thereby facilitating the complex treatment decision-making process

• Evidence on the impact of surgical technique (transoral laser microsurgery vs transoral robotic surgery) which will guide policy and clinical decision making

• Greater understanding of functional changes which will improve pre-treatment education, thus reducing anxiety and engagement (patients and carers) in the post-operative period.

• Qualitative data to enhance the understanding of oropharyngeal dysfunction, highlighting the timing and nature of functional problems, alongside patient and carer priorities.  This will optimise care pathways and efficient clinical management. It will also enhance understanding of patient experience of functional assessments and data collection processes.

• a set of core outcome measures, which has been identified by an international panel of experts (clinicians and patients), aiming to reduce heterogeneity in future research data, allowing for comparisons amongst observational studies, strengthening the evidence available to clinicians.

• Supervisors: Professor Jo Patterson,

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Shamah’s research aims to evaluate the diagnostic accuracy of screening tests for detecting aspiration in patients with head and neck cancers.  Throughout thesis, Shamah presents three different studies. An initial systematic review will be conducted to assess the diagnostic accuracy of swallowing screening tools for detecting aspiration among head and neck cancer patients. Using existing data, the second study will evaluate the diagnostic accuracy of the 100mL Water Swallow Test for detecting aspiration will be compared with videofluoroscopic swallowing evaluations for patients with HPV+ Head & Neck Cancer. The final study will use a modified water swallow test to screen people treated for head and neck cancer for aspiration.

Supervisors: Joanne Patterson, Michelle Lawton, Jenan Altamimi, Andrew Schache

Alison’s doctoral thesis aims to provide an example of how patients receiving treatment for HNL have an improved quality of life and better chances of swallowing a normal texture of diet without needing to eat softer foods or rely on high calorie alternatives like drinks or liquid food through feeding tubes in the stomach. Ideas of what could be done to improve patient care and help to better manage HNL will be discussed. Together, refinement of a personalised treatment programme will be agreed. The agreed solution will then be tested with HNC patients to get their view.

Research Question:

Is Complete Decongestive Therapy (CDT) a feasible and acceptable intervention for patients with head & neck lymphoedema (HNL) following treatment for head and neck cancer (HNC)?

Research Objectives:

1. To identify and critically review the content and relevance of the literature on HNL interventions and their impact on dysphagia outcomes, retention and adherence.

2. Co-Production: Identification of solutions to acceptability, refining the intervention, and materials used with patient and AHP stakeholder workshops, along with a principal patient co-creator.

3. To deliver a co-produced individualised CDT intervention to HaNC patients with HNL and evaluate its acceptability and feasibility

Methods:

There will be three work-streams in this research:

Work-stream 1: A Systematic Review

A search of any research that has used CDT to treat HNL to understand if this type of treatment has previously been practical to HNC patients receiving it, and if it improved their swallowing function.· Work-stream 2: Co production

Three workshops of people who have had HNC, their partners/carers and HNC health professionals. People will be invited nationally and called ‘coproduction participants’. Participants will be asked to share challenges and thoughts on the treatment programme itself. Any changes to the treatment programme and therapy resources will be made once agreed.

Work-stream 3: Feasibility study

This will test if personalised CDT is a practical and acceptable treatment for HNL to improve swallowing. Afterwards, participants will be invited to take part in a short interview to share their views on the treatment. 

Supervisors: Professor Jo Patterson, Dr Gemma Cherry, Mr Jason Fleming

Manish Singh is a Mechanical Design Engineer with over 3 years of experience in end-to-end product development, focusing on CAD modelling, DFMA, prototyping, and design validation. He has worked on projects across the medical, consumer electronics, and industrial sectors, helping to make products more usable and easier to manufacture. A MSc graduate in Product Design and Management from the University of Liverpool, he enjoys blending technical skills like engineering analysis and additive manufacturing with a creative, human-centered approach to design. Manish is passionate about solving problems, working collaboratively, and bringing ideas to life in fast-paced R&D environments.

Ellie Light holds a Masters qualification in Physician Associate Studies, and is a qualified Therapeutic Radiographer in the UK. Ellie has gained diverse clinical experience across primary and secondary care, including great experience and knowledge in oncology. She currently works as a Research Assistant on the IRIS study, a national project exploring immersive radiotherapy experiences for head and neck cancer patients. This role reflects her passion for combining clinical care and innovation and research to improve patient outcomes.

Ellie is particularly interested in cancer services, radiotherapy advances, and the integration of emerging technologies into patient-centred care. She is dedicated to advancing oncology through both clinical practice and research, with a focus on improving outcomes and experience for cancer patients.

Dr Andrew Riley is a health services researcher in the Department of Primary Care and Mental Health at the University of Liverpool.

His research involves evaluating community health interventions, collaborating with service users, healthcare professionals, and voluntary sector partners to understand how services work, for whom, and under what circumstances.

Originally from the North West, Andrew lives in Liverpool and enjoys running marathons and hill walking in his spare time.

Taran Malhotra is a Lead Clinical Scientist in Reconstructive Science at the Liverpool Head and Neck Centre and Clinical Tutor at Manchester Metropolitan University. With over 15 years’ clinical experience, she specialises in prosthetic rehabilitation and 3D virtual surgical planning (VSP), combining innovation with a strong focus on the psychosocial needs of patients living with facial differences.

Taran is the first in her speciality to receive NIHR funding through the Pre-doctoral Clinical and Practitioner Academic Fellowship (PCAF). Her current research project, FACES, focuses on co-designing a person-centred and co-designed psychosocial intervention for individuals with head and neck cancer who use facial prostheses. She is a peer reviewer for the British Journal of Oral and Maxillofacial Surgery (BJOMS) and an invited contributor to two major surgical textbooks.

Nationally, Taran serves as Research Officer for the Institute of Maxillofacial Prosthetists and Technologists (IMPT), promoting research engagement and interdisciplinary collaboration. She is also an accredited supervisor with the Academy of Healthcare Science (AHCS). Internationally, she has provided vocational training in India and Sri Lanka, delivering specialist education in digital surgical planning and prosthetic rehabilitation to multidisciplinary teams.

Her research leadership is grounded in clinical expertise, inclusive co-design, and a deep commitment to improving outcomes for an often-overlooked patient group.

Deborah is a Speech and Language Therapist specialising in Head and Neck Cancer. In 2022 she secured an NIHR pre-doctoral fellowship and completed a systematic review to investigate remote Speech and Language Therapy interventions in Head and Neck Cancer.

In June 2025 she commenced an NIHR pre-doctoral bridging scheme with the University of Liverpool, with a focus on digital innovations to support patients with Head and Neck Cancer. The aim of her proposed research is to co-design and investigate the acceptability of a digital package to support patients during and following treatment for Head and Neck Cancer.

Dr. Kate Hutcheson is a Professor and Deputy Director of Clinical Research in the Department of Head and Neck Surgery with dual appointment in the Division of Radiation Oncology at the University of Texas MD Anderson Cancer Center. She serves as Section Chief and Research Director for the Section of Speech Pathology and Audiology. Dr. Hutcheson is a certified speech-language pathologist, a Board Certified Specialist in Swallowing and Swallowing Disorders (BCS-S), and holds a Doctorate Degree in Epidemiology. She maintains an active clinical practice and research program. She has authored over 120 journal articles with funding support from the National Institutes of Health, Patient Centered Outcomes Research Institute, the MD Anderson Institutional Research Grant Award program, and the CPRIT UT Health Innovation Training Program. She is an accomplished clinician and educator who lectures nationally and internationally on radiation associated dysphagia and head and neck cancer rehabilitation.

Roganie is a consultant speech and language therapist and clinical-academic at University College London Hospital and an Associate Professor at the University College London Head and Neck Academic Centre. She is currently an AHP representative on the British Association of Head and Neck Oncology Council, co-research lead for the RCSLT Head and Neck CEN, and UK representative on the research board of the European Society of Swallowing Disorders (ESSD).

Roganie undertook her honours and master’s degrees in South Africa where she qualified as a speech pathologist and audiologist working at the Chris Hani Baragwanath Hospital in Soweto and the Johannesburg General Hospital prior to re-locating to the UK. She has more than 30 years of experience as a clinician, predominantly in the field of ENT and head and neck cancer focussing on dysphagia. Alongside clinical work, Roganie has been the recipient of multiple NIHR awards which have enabled her to develop as a researcher. These include a NIHR doctoral fellowship (CDRF), clinical lectureship and post-doctoral funding. Most recently she was awarded a Senior Clinical and Practitioner Research Award where she will work closely with researchers both in Liverpool and London collaborating on and facilitating multicentre research in head and neck pre/rehabilitation across the country. Having obtained her PhD in behavioural science and health at UCL and had training in applied health research, Roganie is ideally placed to apply these skills to her clinical research interests. Roganie was the chief investigator for SIP SMART, an SLT-led, pilot multicentre clinical trial on dysphagia prehabilitation for people with head and neck cancer. Roganie has published widely in her field, presented her work nationally and internationally and is actively involved in postgraduate teaching and research supervision alongside several professional committee roles.

Dr. Soultana Papadopoulou, PhD (Medical School, University of Ioannina, 2014), serves as Assistant Professor in the Department of Speech and Language Therapy at the University of Ioannina.

Her scholarship is devoted to the multifaceted study of dysphagia in both neurodevelopmental and medical contexts, with particular emphasis on the rigorous detection, comprehensive assessment, and targeted intervention of feeding and swallowing disorders, as well as the meticulous adaptation and validation of clinical screening instruments for Greek-speaking dysphagic populations.

Her research portfolio encompasses randomized clinical trials, systematic reviews, and authoritative chapters in international edited volumes, alongside numerous peer-reviewed articles that advance novel interventional paradigms.

She has supervised a breadth of clinical and pedagogical investigations in language development, dysphagia, and special education, contributed teaching in Erasmus exchanges, and engages actively in scientific and administrative committees. Through these endeavors, she fosters interdisciplinary dialogue and propels an integrated, lifespan-oriented understanding and management of dysphagia across diverse pathological cohorts.

Dr McRae is an Associate Professor at City St George’s and has been the Director of Research in the Centre for Allied Health over the last 5 years. Alongside that, she has continued her clinical practice as a Speech and Language Therapist in numerous London Teaching Hospitals. She has over 30 years’ experience working with acute adults with complex dysphagia in specialist and general critical care units and leading SLT services through innovations.

Her research has focused on optimising the multi-professional management of swallowing and communication problems in people with spinal cord injury (known as the DAISY project), a low volume but high acuity population. She has a special interest in the use of flexible nasendoscopy by SLTs to support respiratory weaning and swallowing interventions in the intensive care patient population.

Jackie has been awarded research grant funding to progress her research interests, notably the NIHR doctoral research fellowship, post-doctoral bridging fellowship and Development and Skills Enhancement (DSE) Award.  This will help to build collaborations between London and Liverpool and support the development of a Northern Spinal Cord Injury hub that will facilitate education and enhanced practices.

She has published several papers and book chapters about the complexity of laryngeal impairments in people with spinal cord injury and the advanced role of SLTs delivering rehabilitation in intensive care and presented on this topic at conferences nationally and internationally. Jackie is a professional advisor to the Royal College of Speech and Language Therapists, contributing to national guidance relating to clinical practice in ICU and clinical academic careers. She provides research supervision and mentorship to pre-doctoral and doctoral students, predominantly SLTs. She also delivers clinical supervision to SLTs working in intensive care environments to ensure safe and effective service delivery.

Jackie has been involved in research capacity development for allied health professionals and sits on several research funding and innovation committees to ensure there is wide representation. She has recently been involved in developing a digital platform for swallowing rehabilitation and is interested in the potential use of AI to support the role of SLT.

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 Biography

Adrian has been a member of the sport and exercise science programme team within the Department of Sport and Physical Activity since October 2012. He was previously a lecturer at the University of Hull at which he completed his PhD in exercise physiology. He currently leads BSc Sport and Exercise Science modules in exercise and health and in clinical exercise physiology. In addition to his academic qualifications in sport and exercise science, Adrian holds many vocational qualifications in health and fitness, including specialist qualifications in cancer, cardiovascular disease, obesity and diabetes, exercise referral, older adults, pre- and postnatal exercise, corrective exercise, and management of low back pain He is the Designated Individual for human tissue compliance within the University, and sits on the central university ethics committee.

Research Interests

Adrian’s is probably best known for his research into the measurement and development of cardiorespiratory fitness. He also has a strong interest in factors that explain exercise tolerance during maximal exercise. His current research focuses on exercise testing and prescription in clinical populations, such as those with head and neck cancer, cardiac disease, and pulmonary disease.

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Chris has made significant contributions to respiratory physiology over 35 years, publishing over 300 papers. His work focuses on human lung injury, remodeling, comorbidity, and treatment effects. Funded by organizations like NHMRC, MRC, and Wellcome, his research has practical implications. The Ward lab’s pioneering work on neutrophilic airway pathophysiology and differentiated airway epithelium has impacted lung research including COVID discovery research.

Supervision and Collaboration: Chris has supervised 15 PhD students in the UK, fostering effective working relationships. His postdocs have transitioned to clinician scientist roles, and overseas students have become PIs and associate professors.

Impact and Engagement: Chris actively engages with patients, initiating a fibrotic lung disease user group. His research has influenced clinical practice, including lung transplantation and CF clinics. His overseas students have applied their training in COPD prognostication and infectious diseases. His commitment to broader societal benefit extends to teaching and linking NHS and University colleagues.

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Heather Starmer is a Clinical Professor and Director of the Head and Neck Cancer Speech and Swallowing Rehabilitation Center. She is a Board Certified Specialist in Swallowing and Swallowing Disorders. in 2023 she was awarded the prestigious Fellow designation by the American Speech Language and Hearing Association (ASHA).

Prior to joining the faculty at Stanford University, Professor Starmer served as the lead of the head and neck cancer rehabilitation program at Johns Hopkins University.
She has pursued doctoral studies at the University of Liverpool with completion of her PhD in Applied Health Research in 2024. Her doctoral dissertation focused on the assessment of head and neck lymphedema with a particular emphasis on the patient experience and quality of life.

Professor Starmer specialises in the rehabilitation of speech, voice, and swallowing in patients with head and neck cancer. She has particular interest in prevention of communication and swallowing disorders associated with radiation and chemotherapy. She has a strong interest in head and neck cancer survivorship and helping patients to accomplish their personal goals and to optimize their quality of life long term.

Professor Starmer's academic goals include improving communication and swallowing outcomes following a diagnosis of head and neck cancer through clinical research. She was a key member of a collaborative research group at Johns Hopkins resulting in multiple publications and presentations on strategies to minimize speech and swallowing difficulties. Recent advances in pain management during radiation therapy developed by this research collaborative have already shown great promise in protecting patients from potential swallowing difficulties during and after their cancer treatment. She works closely with colleagues in surgery, radiation oncology, and medical oncology to tackle the often difficult problems encountered by patients with head and neck cancer. She has particular interest in investigating the role of innovative surgical techniques such as Transoral Robotic Surgery (TORS) in minimizing long term functional deficits. She regularly collaborates with colleagues around the globe to develop innovative solutions to challenges encountered by head and neck care teams and the patients they serve.

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Mike joined Teesside University in November 2023 after a long career in the North-East NHS, leading groups that specialise in physiological measurement and in medical device development, regulation and assessment.

Mike’s academic activities have been linked with his NHS role in developing novel med-tech, and also with the training of healthcare professionals, notably through the UK's Scientist Training Programme (STP).

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David (known as “Winnie) is a consultant ENT, head, neck and thyroid surgeon at the Freeman Hospital in Newcastle. His clinical work centres on developing safe processes of care, reducing inequality and developing the roles of Allied Healthcare Professionals and trainee surgeons. He is currently the Health & Care Research Director for the North East and North Cumbria RRDN.

His research interests are broad but his main focus is on optimising patient centred outcomes in head and neck cancer. He has expertise in shared decision making and informed consent and co-led the development of the Royal College of Surgeons of Edinburgh “Informed Consent: Sharing the Decision” ICONS course. He is also the chief investigator for the Laryngeal Cancer Cohort (LARCH) which runs across the Northern Head and Neck Cancer Alliance

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Catriona joined the University of Sheffield in 2018 after obtaining a Yorkshire Cancer Research (YCR) ‘CONNECTS’ Senior Clinical Research Fellowship. She is also an Honorary Consultant in Palliative Medicine at Sheffield Teaching Hospitals NHS Foundation Trust.

Catriona was awarded my Doctor of Medicine (MD) degree from the University of Liverpool in 2010. Her MD evaluated quality of care for dying patients and their families (last days of life) as perceived by bereaved relatives. From this work, she developed and validated the international ‘Care Of the Dying Evaluation’ (CODETM) tool.

Catriona’s belief that palliative care should help address injustices and inequities drives her research interests. These include complex cancer groups e.g., head and neck cancer, mesothelioma, and improving access and integration of palliative care, including bereavement support, through inclusive methodology.

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Andy is a Reader in Psychology at Edge Hill University’s Department of Psychology, He is a Chartered Psychologist, and an Associate Fellow of the British Psychological Society. His research sits at the intersection of social and health psychology, with a strong focus on predicting, understanding, and changing lifestyle behaviours. Andy works collaboratively within multidisciplinary teams to address complex health challenges through behavioural science. He has a particular interest in designing and implementing interventions that support the promotion, prevention, and self-management of health-related behaviours. A growing area of his work centres on understanding behaviour change in people living with and beyond head and neck cancer, with a specific emphasis on increasing physical activity. Andy is especially interested in how behaviour change theory can be effectively applied by healthcare professionals and patient groups in both clinical and community settings to support sustainable lifestyle changes that improve recovery and long-term outcomes.

Jo Trask, Head of Health Inequalities and patient engagement at Cheshire and Merseyside Cancer Alliance has over 30 years of experience in inequity.

Jo specialises in development of staff to tackle health inequalities, cancer pathways and inequity, and involving diverse patient representation in all work. With a background in the third sector and NHS, supporting people we hear from least, Jo has helped a wide range of organisations to embrace the challenge of tackling health inequality, encouraging active approaches across systems.

Jo works widely across the UK to support cancer services working towards equity

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Val spent 37 years in education before retiring in 2010 after undergoing Chemo/radiotherapy for Head and Neck Cancer ( HNC). The effects of this mean she is reliant on PEG feeding for most of her nutrition.

After taking part in a study into Altered Eating Val became involved in research. She is currently a co applicant on 5 studies and has co authored several papers.

In 2017 she was presented with a Giving Voice award on behalf of the RCSLT.

In 2022 she became the first Patient President at the Swallows International Conference.

In May 2023 she was awarded Honorary Life Membership of BAHNO.

She leads a small group of HNC patients called CHANGE who support studies, promoting the patient voice.

Vince is a head and neck cancer patient, who was initially diagnosed in 2005 and subsequently with osteoradionecrosis in 2016.

He is Vice-Chair and Secretary of the HaNC PPI Research Forum Patient & Public Research Groups | Liverpool Head & Neck Centre a group of Cheshire and Merseyside patients and carers who support research into head and neck cancer, primarily undertaken by the Liverpool Head and Neck Centre.

Vince is retired and was formerly a Director of the Shop Direct/Littlewoods Group and a Trustee of the Liverpool Everyman/Playhouse Theatres.

Christopher John (Chris) Elkington

F.M.S; M.C.I.Mgt

Married, Father and Grandfather

Lincolnshire born and bred, currently living in Suffolk

Retired CEO of a consortium of Local Authorities

Former Chair of Parish Council, School Governors, Admissions and Exclusions Panels, Scouts and a myriad of small groups

Head and Neck Cancer Survivor – currently 13+ years

Current Chair of Head and Neck Cancer UK (HANCUK).   www.hancuk.org

Director, Trustee and Company Secretary of multi-national professional Institute

Founder and current Trustee of Lincoln City Football Club former players association

Former Independent member of Standards Committees of two Local Authorities

Passionate about raising awareness of Head and Neck Cancer (by any means) inc

Radio, TV, presentations to clinicians, students , pharma companies & professional bodies and lobbying MP’s. ministers and decision makers

Participating in, and sometimes leading, PPI groups in a variety of research projects, particularly advocating for the use of non- clinical language in patient facing documents.

Understanding emotional challenges after treatment for head and neck cancer.

A head and neck cancer diagnosis can have a threat to life and treatments can be invasive and life changing. Treatment regimens can impair physical and psychological well-being caused by facial disfigurement and / or disability, such as difficulties speaking, breathing, or swallowing. Therefore, difficulties with emotional distress such as depression, anxiety and cancer-related post-traumatic stress symptoms can occur.  Studies have suggested that people with HNC have increased risk of emotional distress and suicidal tendencies in comparison with other tumour types as well as being four times higher than the general population.

Research exploring psychological mechanisms that underpin the development of emotional difficulties and keep them going is limited within HNC. This cross-sectional study will investigate the role of metacognitive beliefs and self-compassion in the development and maintenance of anxiety, depression, and cancer-related post-traumatic stress. The study will collect questionnaire measures at one time point and will use quantitative methods to analyse the data. Participants will be able to complete the measures using an online link or using paper and pen.

The study is being conducted as partial completion of the Doctorate in Clinical Psychology at the University of Liverpool and has been designed in conjunction with the Aintree Patient and Participation Involvement group at the HNC unit at Aintree Hospital. The findings will be published in a peer reviewed journal and will help us understand psychological interventions for people with HNC and how we can help minimise distress following treatments